ehlers danlos syndrome

Diversity: It's About More Than Race and Gender

Diversity: It's About More Than Race and Gender

“Your medical record isn’t proof of your condition.”

I’m paraphrasing and summarizing the response I received after four hours of trying to resurrect a dead “Ask Me Anything” on r/IAMA on Reddit. The AMA had gone fantastically, with plenty of engagement from other people with my condition asking questions that the answers might help them make their days (or in one case, the life of their 4-year-old daughter) a little easier. But then, in one fell swoop, a comment appeared from the mods and the post removed. Why?

Author Update: Housekeeping and exciting news

Author Update: Housekeeping and exciting news

Progress, progress, progress! The manuscript came back to me, was reviewed, and is once more back in the hands of my extraordinarily wonderful editor for more hacking and slashing. I am now working on the next big to-do for publishing: cover art! We are inching forward in the home stretch, and soon The Dying Sun will be available for purchase.