“Your medical record isn’t proof of your condition.”
I’m paraphrasing and summarizing the response I received after four hours of trying to resurrect a dead “Ask Me Anything” on r/IAMA on Reddit. The AMA had gone fantastically, with plenty of engagement from other people with my condition asking questions that the answers might help them make their days (or in one case, the life of their 4-year-old daughter) a little easier. But then, in one fell swoop, a comment appeared from the mods and the post removed. Why?